We don’t need to invent everything ourselves, and we can learn from each other. This has been the core message in the National Initiatives Network on the secondary use of health and social data since 2017, when Sitra established and started coordinating the network. The network focuses on sharing knowledge and up-to-date information on creating the best growth environment for health and social data research, development, and innovation in Europe and globally.
To celebrate the network’s five-year journey, the network invites all experts and pioneers in data-driven health to join an online event on Monday 28 November at 10.30-12.30 CET.
The event highlights network’s core activities. Each country will share what obstacles they have overcome, lessons they have learnt, how ready their countries are to uptake the upcoming European health data space legislation and what they are most excited about in the development of secondary use of health data. It is a great opportunity to hear updates from various countries, also outside of Europe such as Australia, Israel, and New Zealand.
Network’s three subgroups will step on stage with topics on 1) mydata – how EU Data Governance Act supports achieving the goals in the MyData Declaration, 2) metadata – how valuable the well-defined set of metadata is, and 3) synthetic data – what’s the newest new in the synthetic data scene.
Register for the event and you will receive a link to the online event.
Programme
Time (CET) | |
---|---|
10.30 |
National Initiatives Network – five years of collaboration
Saara Malkamäki, Specialist, Health data 2030, Sitra
|
10.35 |
Fair about data: In the rhythm of MyData
Antti ‘Jogi’ Poikola, Leading Specialist, Gaia-X Finland, Sitra
MyData Operators as data intermediaries − How EU Data Governance Act supports achieving the goals in the MyData Declaration. |
10.50 |
Meta of metadata
Zóltan Lantos, Head of Social Innovation Lab, Health Experience Institute
Data Value Chain Study to demonstrate that the data space projected from reality is only valuable resource if the context of all data points is accurately described by well-defined set of metadata. |
11.05 |
Spin me around – what’s new in synthetic data world?
Simon Wong, Head of Education and Training & Computational Scientist, Irish Centre for High-End Computing
|
11.20 |
Break
|
11.25 |
International Lounge
Each country shares obstacles to overcome, lessons learnt, EHDS legislation readiness and what they are now excited about.
|
12.25 |
Coming up next
Saara Malkamäki, Specialist, Health data 2030, Sitra
|
12.30 |
Event ends
|
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