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Advancing the secondary use of health data – insights across Europe and globally
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Advancing the secondary use of health data – insights across Europe and globally

How to advance the use of health data in research, development, and innovation to create better health and care for people? The National Initiatives Network invites experts and pioneers in data-driven health to join an online event on 28 November to hear insights and learn from best practices and recent developments in using health and social data in various countries. Metadata, synthetic data and mydata will have a central role in the programme.

  • November 28, 2022 at 10:30 am - 12:30 pm
  • Online event: Teams
  • #healthdata

We don’t need to invent everything ourselves, and we can learn from each other. This has been the core message in the National Initiatives Network on the secondary use of health and social data since 2017, when Sitra established and started coordinating the network. The network focuses on sharing knowledge and up-to-date information on creating the best growth environment for health and social data research, development, and innovation in Europe and globally.

To celebrate the network’s five-year journey, the network invites all experts and pioneers in data-driven health to join an online event on Monday 28 November at 10.30-12.30 CET.

The event highlights network’s core activities. Each country will share what obstacles they have overcome, lessons they have learnt, how ready their countries are to uptake the upcoming European health data space legislation and what they are most excited about in the development of secondary use of health data. It is a great opportunity to hear updates from various countries, also outside of Europe such as Australia, Israel, and New Zealand.

Network’s three subgroups will step on stage with topics on 1) mydata – how EU Data Governance Act supports achieving the goals in the MyData Declaration, 2) metadata – how valuable the well-defined set of metadata is, and 3) synthetic data – what’s the newest new in the synthetic data scene.

Register for the event and you will receive a link to the online event.

Programme

Time (CET)
10.30
National Initiatives Network – five years of collaboration
Saara Malkamäki, Specialist, Health data 2030, Sitra
10.35
Fair about data: In the rhythm of MyData
Antti ‘Jogi’ Poikola, Leading Specialist, Gaia-X Finland, Sitra

MyData Operators as data intermediaries − How EU Data Governance Act supports achieving the goals in the MyData Declaration.
10.50
Meta of metadata
Zóltan Lantos, Head of Social Innovation Lab, Health Experience Institute

Data Value Chain Study to demonstrate that the data space projected from reality is only valuable resource if the context of all data points is accurately described by well-defined set of metadata.
11.05
Spin me around – what’s new in synthetic data world?
Simon Wong, Head of Education and Training & Computational Scientist, Irish Centre for High-End Computing
11.20
Break
11.25
International Lounge
Each country shares obstacles to overcome, lessons learnt, EHDS legislation readiness and what they are now excited about.
12.25
Coming up next
Saara Malkamäki, Specialist, Health data 2030, Sitra
12.30
Event ends

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